This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Tuesday, March 22, 2011
Weaning to the Left...Weaning to the Right...
The docs continue to work toward weaning Faith by dropping the settings on the ventilator. She still has congestion, but her vitals are strong and we have been without a fever for the last couple of days. That is wonderful especially considering she had a fever all day on Sunday even with regular Tylenol doses throughout the day. The tv in the room continues to get worse and worse to watch...Jesi thinks they are trying to make her leave. On a nasty note with great relief, Faith blew out this morning after several days of storing up treasures. She pushed it all the way up her back and one of the stuffed animals was a casualty of this unfortunate yet very joyous event. The nurse is going to spit shine her tonight...hmmm...this means she will get a bed bath.
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WAY TO GO, FAITH! MUCH BETTER OUT THAN IN! i AM SURE YOU MUST FEEL A LOT BETTER NOW!
ReplyDeleteAMAZING WHAT THOSE LITTLE BODIES CAN HOLD.
HURRAY FOR NO FEVER!
XOXO AND PRAYERS.