This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Monday, March 28, 2011
Faith continues with cough assist (Day 22)
Below I have posted a video of the cough assist machine and how it helps Faith to get the junk up and out. It is not her favorite thing in the world, but it has really helped her to more quickly move the gunk out of her body. She usually rests easier after it because she is clearer in her breathing. She should be completely weaned from the sedatives by tomorrow morning...kicking the addiction. The turning on the jaw is continuing over this week and hopefully we will be done with that soon as well. Then the brackets will remain for 3-4 weeks while her jaw heals at home is the idea. Remember, we probably would have been home for the last week doing the turning of the distractor ourselves had she not contracted the flu. She has handled the flu very well especially considering it is such a nasty bacteria and virus.
Subscribe to:
Post Comments (Atom)
We cannot wait to you can come home! You are such a blessing and an example. I love you!
ReplyDeleteGrace
Oh, that was so hard to watch. I wish I could do it all in her place. But I have to say that she seems to be taking it well considering. God Bless this Child!
ReplyDeleteShe's a fighter and I still can't help but be entranced by those eyes and eyelashes. I wish I could hug her.
Love and prayers,
Lilly's aunt Shisshy