This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Wednesday, March 9, 2011
Please keep praying for Faith
Faith has some complications which we ask prayer for. She turned blue at one point yesterday because mucus was blocking her breathing tube. The great folks at U of M quickly sucked out the blockage and corrected the problem. Her carbon dioxide levels continue to be quite elevated so they are working to correct that. Jesi said her color is not quite normal yet which makes sense with the CO2 problem. I had a bronchial thing hit me after leaving the hospital so please pray that she will not have any issues with the same sickness. Obviously this will impact her more right now. When she has been sick, her CO2 seems to elevate. She is a tough kid, and we very much believe God will get her through this by His mighty hand. He is good and His mercy endures forever.
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dear little faith,
ReplyDeleteprayers are going up for you. for your total healing and continuing to show God's glory through your shining life.
love,
baby lilly's grandmother