This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Tuesday, March 29, 2011
Is Faith the One on Drugs? (Day 23)
The video below shows Faith prone and Jesi pounding on her back. She will often spend a couple of hours at a time like this which tends to loosen her gunk. She didn't have the easiest day. The congestion was hard on her today as she also seemed to be bothered by having a smaller dose of drugs. She is feeling better this evening and has been smiling. Jesi said she has been kind of playful this evening, but is tiring out quickly. The pulmonologist is going to give Faith a different steroid for the next few days to see how she responds to it then we will go from there. Jesi has painted Faith's toenails purple, but I don't have any pictures of it yet. I believe you all will enjoy the video...Jesi has become the PICU entertainment.
Subscribe to:
Post Comments (Atom)
I didn't like watching that sweet baby's face. She is so good. (I know she is drugged, but what a trooper)
ReplyDeleteHugs, prayes, and kisses
Lilly's Aunt Shisshy
We are praying for u all!!!
ReplyDeleteKeep it up little girl! You will be home before you know it!
ReplyDeleteGrace
Jesi, would you like a visit? I would be so happy to come and have a cup of coffee with you! Jim already gave me the green light to steal away from home for a day. I don't want to impose, though, so let me know if you would like for me to come!
ReplyDeleteJill Connelly
Jill Connelly
ReplyDeleteconnelly_jill@yahoo.com