This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Wednesday, March 30, 2011
Keep on Keepin' On (Day 24)
Faith is still not completely off the sedatives since she has still had some withdraw symptoms, but she is receiving very low doses right now. We need to get her off completely so she can be awake and cough on her own. Faith is sitting up in bed for short stretches and does cough on her own when sitting up. She is down to 1 1/2 liter of oxygen through the cannula, and Jesi thinks they may move her out or the PICU soon. Not sure I like that, means we will be with other children in a room and I will be stuck sleeping in a much more crowded room this weekend. Can we stay where we are and be dismissed soon?
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LOL! I am missing you so much! Keep it up little girl you will be better soon!
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