This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Monday, March 7, 2011
Now in PICU for the next 2 weeks
Faith is doing well. As you can see in the picture, she is intubated through her nose instead of her mouth which is much better. The distractor (or erector set as the nurses call it) on her jaw is not yet visible since it is covered by gauze. We will spend the next 2 weeks having her jaw adjusted to grow it out and by the grace of God get her off of the bipap machine. We will continue to put up pictures as available.