This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Thursday, March 24, 2011
TUBE OUT!
The breathing tube was removed from Faith's throat earlier today. She is now on a high flow system and recovering well from the switch. She is working all of the drugs out of her system and is a little upset by the change which we expected. We are ecstatic to have her awake and off of the sedation. Hopefully, I will be able to go tomorrow if this sickness is gone by then. I will try to get pictures up as soon as I am able.
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Good job Faith! I hope after we are done with sickness around here that I will get to see you.
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