Thursday, September 20, 2012
Two of the T18 families that we sent to U of M were there so it was like a T18 convention at Mott Children's Hospital. Mylah is still there recovering well from heart surgery, and Ameir was life-flighted there last night with rsv/pneumonia. On a very positive note, he seems to be a little better and slowly on his way to recovery. Please keep both of these very little ones in your prayers.
Faith is having a colonoscopy this morning. Depending on what they find, we may have exploratory surgery as well. We are praying for them to find the source of the bleeding. We do have a concern about anesthesia because her hemoglobin level is only 8.5 and usually runs over 11. Not having the full blood level is troubling when facing surgery.
Tuesday, September 18, 2012
Faith's stool was different than the previous times we had blood in her stool. Last time was way back in February - it is sad when 6-7 months seems like a long time to stay out of the PICU. So her stool was bloody, but also had some mucus in it which was also bloody. I changed her diaper right before she left and it looked to be almost pure blood with some mucus in it.
Other than being sick a couple of times Faith has been doing well since our last February blood issue which resolved and had not come back until now. The only thing we did differently was to give her some pasteurized cider. Who knows? We will try to keep you updated and appreciate any and all prayers.