This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Wednesday, March 23, 2011
Removing the Tube...
Doctors said they are going to remove Faith's breathing tube tomorrow. They will switch to a high flow system which will like be attached at her nose, but this will mean no more drugs and she will wake up completely. We are really ready to have her off the ventilator so please pray that it goes amazingly well for Faith. So far she has had a great day as they continue to wean her. We are very excited to get through this step because it is the first step to getting out of the hospital. If she does well, it could be very soon. We are definitely ready to put these last couple of weeks in the past because sickness has been running through all of our children including now. Last night Grace decided to projectile vomit from the upper bunk bed. Other than a giant mess, the real problem was Hope sleeping on the floor below....oh yes. Spent 2 hours cleaning it up last night and then woke up feeling sick myself. Not that we are even close, but it began to make me wonder how Job must have felt with all those things happening one after another. We thank God for His faithfulness, and His sense of humor.
Subscribe to:
Post Comments (Atom)
It's so fun to watch her looking around. Wonder what she's thinking!
ReplyDeleteWe are praying for you all!
Jim & Jill Connelly (Awana/FBCRochester)
Chloe, Zak, Willow, & Macy
Can't wait to see how God is going to answer the breathing tube prayer! It occurred to me the other day that you all must not be getting to hold Faith since she's sedated and has all those contraptions on. That must be hard!
ReplyDeleteWhat a nighttime surprise you had at your own house! Poor kids! And poor dad with that clean up!
Praying that your entire family gets well quickly and all the germs are gone before Faith goes home.