This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Tuesday, March 8, 2011
Faith with the sibs
Tomorrow will be the start of adjusting the jaw little by little each day. Today was a bit slow, but Faith is resting comfortably as they try to balance her pain meds. They did try to put in a picc line twice, but failed both times. This is to replace the IV. Also her carbon dioxide level is a little high so they are working to correct that as well. Her siblings were able to see her which was very nice.