This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Saturday, January 14, 2012
Day 4 (yesterday)...Faith is feeling better
Faith is feeling much better, but we still need to get her over the RSV so she can be extubated. After this is done, we still have to figure what is causing the bleeding. She had a blood transfusion yesterday. This is the third time she has lost enough blood to require a transfusion. We figure it will be several more days before Faith can get out of the hospital.