This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
Monday, November 14, 2011
Out of the Hospital
We did make it out of the hospital, but it was by Monday (a week ago), not Sunday as I had hoped. Faith is doing much better and does not appear to be having any pain during her bowel movements. We still have the crazy gas problems which might be accentuated by fighting a little bug. Faith's big sis Hope has been having some stomach pains and feeling a little bad, but not horrible. Faith seems as though she may be fighting it as well. She has definitely improved from yesterday to today so maybe she will get over this and the gas soon. We are beginning to give her regular food to see if that makes a difference.
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Faith + Trisomy 18
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I hope the regular food helps! When Lilly was just on continuous milk at the last hospital stay she was really having a lot of gas issues. But once I started bolus feeding real food - she really settled down.
ReplyDeleteGlad our girls are both back home!