Faith loves loud noises and we took this video of her laughing to our banging sounds. The funniest part was after we took the video. I was laying on the floor across from her watching the video on the camera. She started laughing hard again because she could hear the banging sounds again through the camera's audio.
Hope you enjoy the video...remember this is a little girl who was not supposed to live, likely interact with us in this way.
I saw your summary line on a google alert on trisomy 18. Just wanted to let you know that there is a 10 year old full trisomy 18 child, Kaden McClanahan, who had a jaw distraction at the age of 6 months. :-) I have a daughter with full t18 too. There is a large community of us on facebook: check us out at Trisomy 18 mommies on facebook http://www.facebook.com/groups/T18Mommies/ My daughter, Rebekah, also has severe obstructive apnea. We opted for a trach at 6 weeks of age. At 2 1/2, we can now cap her during awake hours and are almost ready to switch to a bipap. Her story is at http://buddzoo.blogspot.com
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