Well, I have been trying to check on the Medical Good Faith Act's progress and found out today that the full House was going to vote on it...today. I wanted to watch it, but my work day was absolutely nuts so I didn't get to watch and almost forgot about it. So I logged onto the link below to check on the status, and I found out that the bill passed 108 - 0....Unanimous! This is amazing! Now the bill will go back to the Senate for final approval due to language changes in the House then next stop is Governor Snyder's desk. Then we want to work with parents in other states to promote the legislation.
http://www.legislature.mi.gov/(S(0eiof3zufdtiyk55fep5kxfo))/mileg.aspx?page=GetObject&objectName=2013-SB-0165
This blog was started to document our walk through jaw distraction surgery and how it is helping Faith overcome some of the serious issues she has faced including obstructive sleep apnea. After researching jaw distraction surgery, we could only find one other T-18 child to have this procedure done. We hope our story will help other families dealing with Trisomy 18 and we look forward to the day God completes the work He has begun in Faith.
That is AWESOME!!
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