HORSE PILL Update

Faith on our deck today.

SO yesterday we had Faith's hospital visit to have a pill inserted into her small intestines.  This pill can disintegrate so if it gets stuck, it will dissolve.  Well, I have not posted the picture that Jesi had me take this morning, but this huge pill made it through Faith overnight.  It was no fun to clean up the mess, but it passed through without any big problems.  Faith was uncomfortable at times, but now we know the camera pill can be inserted the next time she bleeds so we hopefully see the where the bleeding is occurring inside of her small intestines.  I would post the picture, but it is rather disgusting as I am sure that you can imagine.  The procedure was a success and hopefully will help us find a solution to this bleeding issue.  Faith has now had 5 blood transfusions.

One Hit Wonders

Faith is having a procedure done this morning.  They are going to insert a capsule that will take pictures of her small intestines. We are trying to find the source of her bleeding so pray that God works through these doctors.  This picture has our One Hit Wonder nurses who got Faith's IV into her in one shot. We always appreciate nurses like this.

 

 

A Little BUCKEYE Victor

We just found out that the University of Michigan Mott Children's Hospital is going to feature Faith in their Gift of a Bear program fundraiser this year.  Her story will be feature in a video like the one linked below.  They also will put her on a mailer sent out to between 30,000 and 100,000 people.  We are scheduling a photo shoot for this coming week.  The video shoot will probably be done in September.  Check out the links below to see their website and the type of video they will shoot.  This could come in very handy to help promote the Trisomy Clinic at Mott that we are working on with Dr. Glenn Green.

Gift of a Bear website:
http://givetomott.org/bear/

Gift of a Bear video:
https://www.youtube.com/watch?v=aW_1MJspy7M&feature=youtu.be